Event helps raise awareness about rare neuromuscular disease

RALEIGH, N.C. (WNCN) – A rare, neuromuscular disease is getting some attention in The Triangle this week.

The Myasthenia Gravis Foundation of America (MGFA) is holding their annual National Conference in Raleigh.

An estimated 100,000 people in the United States suffer from MG and there is no known cure. At the conference, patients, doctors, and researchers gathered to discuss the disease, treatment options and new research.

Patients say it is a good opportunity to raise awareness.

“Just always be aware. Those people who might park in a handicap parking place and walk in might not be able to walk out as easily, you know after they have gone through and gotten their groceries. It’s one of those invisible diseases,” said Patricia Fife of Durham. Fife has suffered with MG for over 30 years.

The conference runs through Tuesday and is being held at the Sheraton in downtown Raleigh.

Leave a Reply

Fill in your details below or click an icon to log in:

WordPress.com Logo

You are commenting using your WordPress.com account. Log Out / Change )

Twitter picture

You are commenting using your Twitter account. Log Out / Change )

Facebook photo

You are commenting using your Facebook account. Log Out / Change )

Google+ photo

You are commenting using your Google+ account. Log Out / Change )

Connecting to %s